I heard that disposable diapers are not just high in demand but low in availability right now. I'm grateful that nearly a year ago, we started cloth diapering. It's helped cut down costs, on diaper rashes, and they're seriously so cute. I highly recommend, though I admit that they can take some getting used to.
@bebeboodiapers and @officialjaysnest
have teamed up for a cloth diaper giveaway and rainbow challenge to lighten up the dark clouds that has settled over our world. For the next 7 days, I'll join them in posting a new diaper color of the rainbow. Today's color: RED. ❤️ #bebeboorainbow2020 #bebeboodiapers #clothdiaperlife
Today we had a teleconference with a case worker from the board of education and our Early Intervention (home therapy program) coordinator. We had a lot of questions, but sadly they weren't fully answered since everything is up in the air due to #covid_19.
There are 3 programs recommended for Braveheart and only 1 is half day. Somehow I can't wrap my mind him going from being 💯 home to almost 40 hrs/week of school.
One of the concerns I have is that they won't necessarily grant him 1 on 1. With his low mobility, feeding issues, lack of communication, and unawareness of danger, I adamantly believe he needs 1 on 1. The other issue I have is possibly needing him wheelchair bound. I'm not against it in general, but I know my kiddo. He needs challenges and he hates restriction. If we put him in a wheelchair 7 hours a day, except for PT... I just don't think it's the right choice for him. Plus the issue of insurance approving a wheelchair when we soon need to apply for a new walker. (OUt of pocket the particular walker we need will be over $2000!) One benefit of enrolling him in school is that he will continue to receive therapies. Daily. That'll be great. But if they cannot provide an aide, that concerns me.
What I'd really love for him, for now, is homeschooling with therapies but we have no idea how to even get that process started. I'd love to hear your experiences: with homeschooling, with a special ed preschool program, or ABA at home and in school.
With everything shut down, we can't quite get the answers we need yet. I'm a planner so that stresses me out. The not knowing. I share this to give a little insight for those who don't know what it's like to start a kiddo with special needs off in school. 😉 Just sharing my experiences, and hoping to hear others', because... We're all in this together!
(Bonus points to those who sang the High School Musical song on that last sentence lol)
Yesterday I attended a wedding that I've been sooo excited to attend. But with COVID-19 going on, I was definitely more afraid than normal to bring home something to my little guy. (Medical families are used to the fear and extra precaution that comes along with cold/flu season yearly). I did manage to keep up with social distancing. I danced in my seat/at my table. And I still had a whole lot of fun.
In the end, I'm so glad I went. A couple who I've know since they were young, who have been together for 9 years, who I've known since before they were a couple... Who have been planning this wedding for 2 years... It would've been a shame to miss them become husband and wife. The amount of overwhelming love and respect they have for each other was so heartwarming and refreshing. In this time of high anxiety it was so needed.
I wish them all the happiness and I pray that everyone continued to be safe. Keep practicing social distancing, wash your hands, keep sanitizer nearby for when you can't use soap and water, and just be aware of what's going on around you. Most of all, don't forget to love one another and be kind. We need each other. Even if it's from a safe distance. ❤️
There's an annoying misconception that if a child doesn't look at you or give eye contact, that he's not listening. I never thought of this much before having a child who struggles with eye contact. People focus so much on trying to get him to look at them rather than just talking to him. If they pays close attention, they would see that he may smirk or smile when spoken to. His eyes may light up with recognition. His expression may change to something more pensive. Sometimes he may even react vocally (a little hum or babble). All of these things are his way of acknowledging someone's presence without looking at them. Every now and then, we, as his parents (and grandma too) get really good, albeit brief, moment of eye contact. I gotta admit, in those moments when he looks right into my eyes, I get a weird jolt. Like holy crap, he's LOOKING AT ME! It catches me off guard every time but oh how I love it.
I've gotten used to existing alongside him. Playing beside him. Talking to him, ticking him, etc, all without him necessarily looking at me. At first, it was admittedly frustrating, but now it's our normal. So it's hard to explain to strangers and others that he probably won't look at them. BUT, it doesn't mean he's not listening. He's listening. He's processing. He's taking it all in. And one day, he'll respond! I'm sure he will. So if anyone knows someone who has trouble giving eye contact, don't focus on that, because you'll miss the gem that lies beneath.
#aheartsomejourney #braveheart #autismspectrumdisorder #autistictoddler #autismawareness #autismmom #rarewarrior #chdwarrior #gdd #globaldevelopmentaldelay #sensoryprocessingdisorder #sensoryataxia #instablog #mommyblog